Welcome to Wyatt's Warriors!
This may be a little bit easier for me to update outside of Caring Bridge.
Today the Geers family woke up at 4:15 am and traveled to Cincinnati as a family of 5. Need I say more. The trip was quiet and peaceful for the first 2 hours but once the sun came up so did the bathroom breaks every 30 minutes and the I'm hungry, I'm thirsty.... We did manage to arrive on time for our 10am appointment with Dr. Gordon.
The Not such Good News:
We found out that because Wyatt has nothing on the left side they are not able to distract using an internal device, so they will need to use an external devise. This is more cumbersome and the hardest part is that he will need it on for 5 weeks (not the 2 we originally thought of) AND he won't be able to eat or speak. We will need to use strictly signs and an NG tube (which I said I never wanted to do again). All of this on top of the fact that this poor child will not be able to run around and play like he does. Those of you who know him this will be a hard task in itself as this child does not stop. When I asked what could happen if he falls, the Doctor calmly stated that a screw could cut through his skull and then he would need neurosurgery. This was not as comforting as I was hoping, but it was honest.
The Good News:
The surgery itself will only be about an hour and a half and they WILL be able to remove the ear tags at the same time. There is also not much risk with this particular surgery. Not only do we love Dr. Gordon but the entire office and nursing staff is wonderful. We feel very comfortable there. Also the ENT will be on hand during the surgery because of Wyatt's complicated airway. This was reassuring.
The BEST News:
GOD provides and has our Wyatt in his arms. He never lets us down and is with us and loves us unconditionally everyday without fail.
Additional Information:
I will be taking Wyatt on 12th of December to meet with their Aero digestive team which is the best in the Country. They will be able to evaluate Wyatt's eating and digestion as he tends to choke a lot. It is sort of sad how common this is for us. I am excited to see what they say and recommend.
We will leave on Christmas night to arrive for an appointment with the ENT on the morning of the 26th and surgery is scheduled for the 27th. There is a chance we will get bumped as it is a holiday week but we will know for sure by the 23rd. He will spend 3-5 days in the hospital and then its up to us whether we come home or if I stay with Wyatt for duration at the Ronald McDonald House. We have heard of a few families that came home and regretted it but 5 weeks seems like so long to be away.
A little FUN:
Dr. Gordon suggested we take the kids to EnterTRAINment Junction the Largest indoor train display in the world. What a treat this was. (Especially getting a groupon for 40% off). Anyway there were so many trains through civil war times to present day, play areas, play trains, a fun house and even a stop to see Santa and Mrs. Claus who had freshly baked cookies. This was just what we all needed to get distracted and run of some energy.
There is no place like home:
I tried clicking my heels 20x on the LONGEST trip home. We were right back to kids fighting, tired, whining, bathroom breaks, thirsty, hungry...... Not to mention Tony and I trying to talk through everything and review the appointment and how we are going to juggle it all. I am happy to say after 5 hours we made it home and then 1 hour later everyone is fast asleep. :) We made it, we did. Hip Hip Hooray. :)
Prayer requests:
That we are able to find care for the older boys so Tony and I can be there for Wyatt the day of and immediately following the surgery. For a successful surgery and recovery. For the wisdom to make the right decision on where we should recover. For Wyatt's recovery process-and the frustrations both he and I will encounter with not being able to communicate, eat or keep up with his activity level. Financially as we will be traveling, encountering additional medical expenses and taking time off work unpaid. That we don't loose Wyatt's daycare provider as he will be off for 5 weeks and we LOVE her. For the older boys who although they understand it is hard for them to loose their brother and their mom for 5 weeks. Lastly for peace, it is stressful trying to balance, juggle and comprehend all that is happening.
NO FEAR JUST FAITH!!!!!!
Thank you all for your continued prayers and support.
Follow the links below to Watch Wyatt's video story or to help with medical/travel expenses.
Wyatt's Video Story
Help Support Wyatt's Travel and Medical Expenses
Melissa, I knew you but didn't KNOW you until Bernadette quietly slipped into heaven; not expected and way too early! It was then I MET YOU for the first time. Your faith, fearless faith ... "Therefore, put on every piece of God's armor so you will be able to resist the enemy in the time of evil. Then after the battle you will still be standing firm" (Eph 6:13) in the face of heartache and loss. Your giggle, your laughter, your hug --- all expressions of Jesus' through you. And them came son #1 and #2. What a great MOM you are! Your laughter and love wrapped around each of them. And them came son #3 ... and your faith and momma-love amplified and magnified our LORD. You are amazing and I LOVE you. PS_ You are also married to a most amazing wonderful man!!!
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