A Smile a day!

My guys sleeping in the hospital

Play time this morning

Our door to room 24 at Ronald McDonald. It tells Wyatt's story and pictures of him and brothers.

Wyatt Watching Dora

Wyatt wanting Nothing to do with Picture taking so he refused to open his eyes. Love HIM~




It's hard to believe we started this journey only a week ago, it feels like it has been an eternity. Wyatt  is an amazing little boy who melts my heart day after day. I know many o you follow us on Facebook, but a few do not have Facebook accounts.

A summary of where we are today:

We were discharged yesterday to Ronald McDonald house, honestly it was only by the grace of God they let us go because yesterday was one of his worse days. He pulled out his NG tube and his IV and since his airway is so narrow we had to go to radiology to have a new tube placed. The radiologist tried twice and said it wasn't working and he wasn't going to push it because  he thought Wyatt should be put under for placement. I quickly lifted my head up and said this is our only option, he needs this, I need this, try again. However I looked or whatever precise words came out almost put a look of fear on the poor radiologist face- BUT- he tried one more time and I held my baby tight and sang his favorite song "Hush Little Baby" and SUCCESS!
After going back in forth all day with the Doctors we agreed we would go for discharge in hopes a change of scenery would perk him up. As we were getting ready for discharge I realized something that never crossed my mind. Wyatt can NOT walk with this contraption on and lifting his head was difficult in itself. I was so worried about his inability to eat, drink and speak that I didn't even think of the balance with this added weight on a 2 year olds head. All day yesterday my stomach was in knots. It's hard to know what the right thing is. All I knew is that he was miserable. We had home care meets us at the house to go over tube feedings and although Wyatt was tube fed for 8 months as an infant some things have changed and it seems a whole lot more complicated, on top of this Wyatt is on some medications and needs his pins turned everyday and cleaned which is pure torture or so he acts. I was nervous whether I could remember everything I needed to do, and whether going home was best and how I was going to do all this by myself when Tony leaves... the list goes on. During that visit it was determined Wyatt should have a suction machine because he has trouble swallowing his salvia and it builds up causing risk for aspiration. So today we had a respiratory therapist come out with the suction machine.
Last night was rough, it did not appear the change of scenery was helping at all. He was miserable and wanted to do nothing and if you even looked at him he would shut his eyes and turn away as he was disgusted. Then when it came time for feedings, medicine, pin care....it was as if his world was coming to an end it took the both of us to hold him down. It was a little after midnight when Tony and Wyatt finally passed out and I was at that sweet spot where sleep was within moments and the fire alarm went off. Soooo- we all had to get up take our feeding pole, stroller.... down the steps and outside where we waited for about 20 minutes for the firemen to clear us for reentry. Then we had to get Wyatt relaxed and asleep all over again. Which worked until about 3am and then he moaned and tossed an turned and wouldn't let me let go of him or turn the opposite direction... I was pretty frustrated but trying to keep in mind all this young man has endured.
Today was better, we had a bath and went to play in the playroom with him fighting every step of the way. BUT once we got there he actually played for about 10 minutes and then he was done. We came upstairs took a nap. then went to the store-- which Detroit gets a bad reputation but let me tell you I would feel more comfortable downtown Detroit then I do in this area of Cincinnati. When we got back we decided to try this play thing again and the most wonderful thing happened. Wyatt LAUGHED and SMILED. Glory to God, I needed this, Tony needed this and I KNOW Wyatt needed it. He played for 30 minutes before he was tired and ready to come up and start the nighttime torture. He is now lying calmly with his daddy watching Dora. I have seen every episode of Dora ever made about 5-10x in the last 6 days. This child is obsessed and if I hear the "we did it" song one more time I may vomit. In fact when I was eating fruit this afternoon I actually said "muy deliciouso": its sad really. However, this is the one show that calms him, that and my singing ( I know scary, since I can't sing). All day I have dreaded that Tony is leaving tomorrow and thinking there is no way I am old enough to be responsible for this human being.  Although everyone keeps reminding me I am 35 and am responsible. (When did I become 35 and a mom of 3????) Time sure does fly. We did get news this evening that the boys are covered with my mom tomorrow night and can go to camp on Friday so I can have Tony one more day. This makes us both very happy and me worry less since there is a lot of snow in parts of Ohio and MI. I would have worried about his driving.
The older boys have had a blast this week, spoiled for sure but they deserve it and it made it easier with us being away. They will come with Daddy a week from Friday after school so that means I have to make it 1 week on my own. It didn't, seem bad till I realized we have only been hear a week and it feels like forever. LOL But everyone says I can do it so I must be able to. :) However if anyone wants to visit I have an extra bed, free meals and the weather was 45 and sunny today. :)

I want to end this by saying how grateful I am for so much. Wyatt has taught me so much, my Faith has grown deep, my love for all my children and husband is overabundant. I have felt the love and support from family, friends, church community that we didn't even know existed. I have met so many children and families over the last 2.5 years going through similar and in many cases far more difficult scenarios and the one common thread is you have to know God to get through it. You can't do it on your own. I can pinpoint write away if a family truly has FAITH and it is so sad to see so many don't. I always share my FAITH wanting to give people something to be HOPEFULL for. When people ask us how we do it or say how amazing we are, Thank you but it's not us. It's our FAITH it is GOD 100% we just act on his behalf. It is clear he guides us every step of the way. Sometimes it's hard for me to let go but when I do it is such a peaceful feeling. My cousin recently shared Wyatt's Blog on her Facebook page with a status that said. Read about this amazing boy, if you didn't believe in miracles before you will now. This made my heart happy, if Wyatt's story helps people believe in miracles that is worth the world to me. Let me tell you, if you read and saw what I have read and seen about Wyatt you would 100% believe he is MIRACLE. Wyatt Matthew means BRAVE WARRIOR. There is no doubt this boy deserves this name and no coincidence that this is the name we decided upon after a small sign on an HGTV show. There is a plan for everything and I have seen this demonstrated through so many scenarios in the last 2 years. I am so thankful to have GOD in my life and BLESSED beyond words to live the life I live. There are days that are hard but you just keep pushing through. A was recently recommended a book by a coworker who lost a child called Loving God, When Life Hurts. She said this is what got her and her husband through it.  The title alone made me want this book. Thank you Aunt Mary Jo for ordering and sending to me and Tanya for the recommendation. I can't wait to read it. But just think about that title. LOVING GOD EVEN WHEN LIFE HURTS. Powerful and So important.

Thank you again for all the prayers, support and kind words. I love reading your comments and texts.
Feel free to share Wyatt's page with anyone and if you are on Facebook you can catch quick updates at Wyatt "Warrior" Geers

God Thank you for the ability to see glimpses of my boy today most importantly smiles and laughter. Thank you for giving me another day with my husband. Please continue to look after all of us and look after Tony as he travels home on Friday. Help Wyatt to gain more confidence in his ability to walk and play and be pain free. Help me to gain the confidence I need to get through the next week on my own with you by my side. In your name. AMEN